Monday, April 30, 2012
Saturday, April 28, 2012
Smoky Mountains- a Bear, a Bat and Benaiah
We stopped at the Bush Beans Factory and learned about baked beans and a dog named Duke.
After going to Dandridge to see Davy Crockett's marriage license we came back and relaxed in the hot tub. We thought Benaiah liked it............
He didn't like it and demanded to get out.
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In the farmhouse was a bat.
Running to keep up with his brothers. We have had a good time and Benaiah has enjoyed himself.
We did get to see a Bear. Today we went on a 3.2 round trip hike and Benaiah hiked 98 percent of it himself.Wednesday, April 25, 2012
Monday, April 23, 2012
Yesterday was a trial during church. I am looking for ideas on how to get Benaiah to sit still and be quiet. The things that worked with my other 5 are not working with him. If you have any ideas please tell me. I am at my wits end. On another front, we are getting ready to leave for a week in the Smokies with my parents, brother and his wife. I promise to take more pictures. Benaiah now has his pediatric stroke survivor shirt. Just in time for Pediatric Stroke Awareness Month which is May.
Saturday, April 21, 2012
Seizure and speech
Benaiah thought 140 days was long enough to be seizure free....so on the night of the 140th day he decided to have a seizure. It was his typical kind but it scared him. That seizure began the circus of trying to get a dr to see him. In Ukraine, Mike W wants to see him when he has a seizure and we usually do an eeg then also. Here in the States, we are waiting to see a Neuro and have been waiting since January. Because the Neuro hasn't seen him he couldn't do anything for us. His office told me to get him into is pcp. His pcp refused to see him and said bring him in when he has another seizure. This is totally unacceptable and the Neuro also agreed with it. Thursday was a very frustrating day. Friday turned into a blessing in that the school has accepted Benaiah into the summer school program for speech 2 times a week during summer school and then in July one time a week. I was thrilled as he really does need speech and not a 3 month break from it.
Thursday, April 19, 2012
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