Neuro update

Last week, Benaiah and I went to see Mike W.  He thoroughly examined Benaiah.  He looked closely at his legs and said they looked pretty good.  Benaiah was very afraid of him and Mike wondered why as he loved Mike W before.  Benaiah insists he hurts him but Mike W has never done anything mean to him.  As long as the seizures stay away we don't have to see him till the end of March.  Afterwards, we went to MCD's for the lunch I promised him.  Benaiah was a trooper that day as before our appointment with Mike W, we walked all over town going to 2 pharmacies for Benaiah's meds.  It is wonderful that we don't need a prescription for his seizure meds.  We are spoiled now as we don't to get 3 stamps on his prescriptions like we did with the phenobarb.  Needless to say after all that walking, Benaiah fell asleep on the village bus.  Poor guy was wiped out.  I am thrilled that we are thru visiting the Neuro in the winter.


Benaiah has been busy working on preschool and talking.  Wow, he sure is saying alot.  I am beginning to have hope that Benaiah will be talking as a normal child some day (whatever normal child is).  We understand him but he says words strangely at times  Benaiah will now pick up the ipad and work on his ther apy apps and even the articulation station one.  He seems to want to talk.


Benaiah is truly a blessing and a ray of sunshine in our lives.  The Lord was very merciful to us as Benaiah was sick in the beginning of the week and he did not have a seizure.  I was prepared as his meds have not been upped since October.  We are enjoying these last 19 weeks being seizure free.  I know though that if he does have a breakthru that the Lord will be with us.

This is what we worked on today.  On the last row, I held his hand.

 

Look it Woie, me footprint.

It is the little things.....

Benaiah has been a busy little guy.  Yesterday, he made this snow man.  He cut out the circles and glued them. He also can fly through the first set of his apraxia flash cards now and even say a couple he didn't know before.  His new words include turkey, boys' room and saying boat correctly instead of  saying boak.  Today he worked with Vacil and got covered in cement, but he had fun.  Tonight before going to bed he said "Momma no read book me no nini"( If mommy doesn't read a book to me I am not going to sleep).  I have been pushing the book reading and it has clicked obviously.

This is the snowman that Benaiah made.

A month home

So we have been home for a month now.  Benaiah has adjusted very well to being home.  He likes to help in the kitchen and play with Silas, 7 yrs old.  We have been working on his preschool workbook pages and he really seems to understand the concepts. He holds his pencil good and is cutting with a scissors well.  I have to watch his hand position but I am pleased with how he is doing. I have him repeat the pictures so he is also getting speech.  He has fallen in love with books and enjoys listening to them.  This morning I woke up to him working on his flashcards by himself.  Oh and lastly, he loves the snow.