Thursday, May 10, 2012

Update on our Day at St Louis Children's hospital

 We had a long day today.  It started with an appointment with Dr Copeland.  I liked him a lot and given Benaiah's history with urinary infections and will be having surgery on June 19. Then we saw Dr O.  I was literally sick to my stomach.  But things went well.  He gave Benaiah a good exam.  Benaiah charmed him.  Given his seizure history, Benaiah's diagnosis stands at complex partial seizures, severe speech delay and developmental delay.  The whole day was amazing and the Neuro stated that Mike W's letter of how he treated him really helped him.  We were hoping for no med changes and the doctor agreed that he will stay on Lamictal but will up it.  I was correct about not wanting more seizures to break thru.  Over all I was thrilled that by obvious evidence you can have your epileptic child in Ukraine and you can have a good doctor in Ukraine.  Thank you Lord for guiding our steps.  Thank you for Mike W in Ukraine and Dr. O in St Louis.  As of now, no new tests, no MRIs or eegs and No bloodwork.  We see an eye dr next month.  Dr O also thought Benaiah was a good candidate for augmentive communication device.

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